Health Democracy

In France, the notion of Patient and Public Involvement, or PPI, is intrinsically linked with the concept of "Health Democracy". It is presented as the cornerstone of the development of a fairer, more representative and respectful healthcare system. Based on examples from the field of oncology, this lecture will explore the great diversity of ways in which patients and citizens have either claimed the right to or been invited to participate to medical research, practice or institutions. Where, when and how do they intervene? How can researchers deal with more frequent injunctions to involve patients and citizens in their research projects and what can they learn from it?