In France, the notion of Patient and Public Involvement, or PPI, is intrinsically linked with the concept of "Health Democracy". It is presented as the cornerstone of the development of a fairer, more representative and respectful healthcare system. Based on examples from the field of oncology, this lecture will explore the great diversity of ways in which patients and citizens have either claimed the right to or been invited to participate to medical research, practice or institutions. Where, when and how do they intervene? How can researchers deal with more frequent injunctions to involve patients and citizens in their research projects and what can they learn from it?
• Historical outline of the involvement of patients in medical research:
- HIV,
- Mental health,
- Breast cancer
• Who are these partners in participatory research?
- The Montreal model and the French model,
- Patient and Public Involvement and Health Democracy,
- Individual patients and patients' associations,
- Professionals or volunteers
• Where, when and how can patients or the public be involved in research?
• Case studies
- In social sciences and the humanities
- In biomedical research
• The conditions of a good partnership: what skills need to be developed on the part of patients and researchers
Dr Julia Tinland (Postdoctoral researcher Aix-Marseille University)
From 9:30 to 12:30
Organized in the frame of the EuReCa PhD Program. This project has received funding from the European Union’s Horizon 2020 research and innovation programme under the Marie Skłodowska-Curie actions grant agreement no 847718.
40 participants
This course is for Institut Curie's staff only.
